Danny was different from all the other kids in
Kathy Whalin's class. We didn't know that he was in that class at the
time, because he wasn't generally mainstreamed with his classmates.
Most of his time at school was spent time in room 6 and 7, the two
connected special ed. classrooms in the school. He only occasionally
spent time with his real class. Actually, I should say that he did
spend most of his time with his real class, which was in room 7. The
sweetest kids in the school spent most of their time there, while the
rest of the school had no idea who they actually were at heart and made
fun of them for how they moved or talked -- perhaps out of fear, fear
of being an outcast.
In the beginning of fifth grade, I read a really amazing book called Stuck in Neutral
about a boy with Cerebral Palsy. In the book, the boy could not talk,
or voluntarily move any muscle in his body. He had no way to
communicate to the world. I showed this book to my teacher and told her
how amazing it was and how it made me look at everything from a
different perspective. I told my teacher, Mrs. Sinclair, about this
book, and looking back at that year, I think that one of the reasons
she chose me to be Danny's buddy was because of my interest in this
book. She knew I was taken up in mental disabilities, and she knew I
was responsible and caring. Even though I can't say for surte that that
was the reason she chose me, I think it was part of it.
I remember my teacher calling me up during SSR and
me thinking, "Oh God, what did I do?" But what she talked to me about
was not getting in trouble; it was about my first grade reading buddy.
She asked me if I was interested in being buddies with a boy who wasn't
learning at the rate the other kids in Kathy's class were; in other
words, someone who was retarded. She said that he wasn't that easy to
control, both mentally and physically, and that I should pick someone
who could help me, someone who I would get along with, someone who
would be open-minded to the prospect of a relationship with a special
ed. kid. I couldn't choose between my two friends Connie and Isabel, so
I chose them both.
My teacher was right; Danny wasn't what you'd call
easy to handle. Sometimes he would try to hurt you or run away, or do
something that he couldn't do, either because it was against the rules
or because he wasn't capable. Sometimes he'd get frustrated and
annoyed, and you wouldn't be able to understand what was going on.
Sometimes he'd try to harm you when he got like that. He'd grimace and
screw up his face, and grip your arm hard. It didn't hurt, but he was
trying to be unpleasant to you, and that was against the rules.
But all of our hard work really paid off. He could
be so sweet, so happy. And he really loved us. I know that when I was
gone for a day, sick or on vacation, when I came back I was informed
that he was asking about me. He did that for Isabel and Connie, as well.
Danny talked in the third person. He'd always say,
"Danny's dad," or "Danny's going home?" On Fridays every week he would
go home early because he went to a swimming program for autistic kids.
That day his father wouldn't pick him up and all day he would say,
"Danny's dad's coming!" and we would tell him, "No, today is Friday.
You're going swimming. Dad comes later." But he would repeat it all
through the day because his dad coming was such a big part of his
routine. I also remember one time where he had a toy school bus and he
would sing under his breath as he apprehensively paced the inside
perimeter of room 7. Isabel asked him what he was singing, and he kind
of smiled and went on muttereing. Then he'd shake his head, still
smiling, and we would eventually go back to talking.
We saw Danny every day, but he wasn't the only child
in room 7 we spent time with. Connie and Isabel and I would come there
during lunch and SSR to see Danny and the other kids. Paavlina and Paul
and Matthew and Bowmun and Will and Asher were all really important to
us. Paul and Matthew were really good friends, and Paul's hair was
really soft. He was really small and talked with a slight lisp. He
really liked to touch people's heads. Matthew was tan with curly black
hair, and he was taller than Paul but a lot quieter. When he smiled,
his whole face lit up. Paavlina was loud and gave kisses, and she was
small like Paul. Will was in a wheelchair but he was really smart and
he and his aide developed a way of communicating because he couldn't
talk. Bowmun was small and quiet and didn't come much to room 7. And
Asher was loud but didn't really form words, but he was an amazing
artist. He loved to draw, paint, sculpt, any medium and he'd create
something.
Sometimes I don't know how Danny's family dealt with
it all. His older brother had (and still has) cancer, and with the
attention and Care Danny needed it seemed like the easiest thing
could've been to put Danny in some kind of center. But they chose the
harder way, which was also the way that Danny was happiest, I think.
Danny's dad was the sweetest guy ever, and he completely supported
Danny and was really present in his life. Every day when he came to
pick Danny up, Danny's face would light up and he'd yell, "Dad!" at the
top of his lungs. His dad would hug him really hard and he'd also smile
like this was the best part of his day. If Danny was challenging at
school, I can't really imagine what it would've been like to have him
at home.
You can tell that this is a bittersweet thing for
me. I hate the people who tease the retarded kids. Sometimes, during
SSR, some of our class would sit outside and read. During that time,
we'd go to room 7, which was right down the hall from our normal
classroom. Kids would sit there and bang their hands against their
chests in a "spazzy" way, or make faces or something. Retarded
literally means "slow," and no one laughs at you if you can't grasp
imaginary numbers when you're five. But they laugh at you if you act a
certain way, or say things differently, or look different. Remembering
that year of fifth grade brings back a lot of hard feelings for the
people who made fun of the children in room 7. Some of the people were
my friends, but not for long. They got the message from me that it was
NOT OKAY to tease the room 7 kids, or any other kids with mental
disabilities.
When Connie and Isabel and I graduated from Ocean
View, Danny's dad gave us all cards, flowers, and chocolate. He didn't
have to, but he appreciated our work since our presence in Danny's life
made a difference to Danny. He said that he would miss us and our care
for Danny, and that he wished we didn't have to leave the elementary
school without Danny because we were such a great team working with
him. We didn't want to move on, either, if it meant losing Danny in our
everyday lives, but we survived. Last year, sixth grade, I saw him
every Friday at a swimming program for autistic kids I volunteered in
(the same one I mentioned before). I also participated in an adapted
P.E. program. I wouldn't have done those things without Danny's
presence in my life two years ago. I still come back to the memories of
him and realize how much I miss him. At timea I wish I could be at
Ocean View again so that I could see him every day like in fifth grade.
Writing this paper reminds me of how big of a connection we had and how
it changed my outlook on life. I never would have done the programs I
did without him, never would have made some of the friends I have at
the middle school, never would have discovered the cruel side of some
of my peers without him. And most importantly, I gave him something,
too. I gave him my love and care and friendship. He taught me so much.
Danny changed my life.